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Top 10 New Year’s Resolutions for Family Caregivers

January 14, 2008


Food for thought for 2008…

OK, caregivers, it’s time to take your caregiving situation in hand. Now, everybody please raise your right hand and make these resolutions along with me. I do hereby solemnly swear that…

10. I won’t try to be the Lone Ranger

As a family caregiver, you’re a person trying to do the right thing for a family elder who needs your help. You may be the only one who has stepped forward to take on the job, but that doesn’t mean you have to do everything all by yourself.

You owe it to yourself not to try to be the Lone Ranger. For one thing, you probably don’t have the “fiery horse with the speed of light!” For another thing, you don’t have Tonto, the companion who always has your back and will bail you out when you’re in a jam.

The other people you do have – family, friends, neighbors, members of social and service clubs, members of your church or synagogue, etc. – can and will do things to help you. But you have to ask.

It may seem difficult to ask sometimes, but it’s a lot easier than trying to be the Lone Ranger.

9. I will make time for myself

Time for yourself isn’t about taking a vacation alone; it’s about privacy. The nasty little surprise about family caregiving (that a lot of people don’t see coming) is that you can find yourself isolated yet without privacy.

To do your very best for your elder, you need a place where your elder simply doesn’t go. It doesn’t have to be much. I think a private room is best, but it can be a private desk or even just a computer that your elder doesn’t use, located in a place where your elder won’t be watching you when you use it.

8. I will eat and exercise sensibly

OK, so I’m nagging you.

But you already know the reasons for sensible diet and exercise. These are things you should be doing anyway, especially since you are now a family caregiver. If you’ve been putting off the diet and exercise regimens you know you need, now is time to start them.

End of nag.

7. I will ask for outside advice when I need it

This shouldn’t be hard, but a lot of people find it so. Maybe it’s just human nature. If you don’t know the answer to a question, it’s sometimes easy to forget that other people do know. This is especially true for questions that should be answered by professionals. If you have a legal question, get the answer from a lawyer. Don’t listen to Peg at the coffee shop whose mother “was in exactly the same situation.” Maybe that situation was the same and maybe it wasn’t. Even it was the same, maybe Peg didn’t get the best advice.

Take legal questions to an attorney. Take medical questions to a doctor. Take financial questions to a financial planner or accountant.

Your local Area Agency on Aging can answer a lot of your questions and will give you trustworthy referrals for everything else. There may be other organizations in your area that can help as well. Make it your business to find out who they are.

6. I will organize my elder’s medical, legal and financial information

This goes with number 7 above. To get the best advice from a professional you need to be able to the supply the background information that professional will need. There really is a lot to do here.

5. I will keep a caregiving notebook and journal

This isn’t a gripe log where you blow off steam or a martyr book in which you write down all the reasons you’re going to heaven for being a caregiver. Instead, it’s where you record daily information about the condition of your elder and the care that elder receives.

Record summaries of appointments with medical, legal and financial advisors. Write down the names of visitors and how long they stayed. Document your daily routine. Record expenses you wouldn’t have had except for your responsibilities as a caregiver. If your elder does or says anything that strikes you as significant, write it down. Over time, your journal will become a crucial resource for you and others involved in your elder’s care.

Also, your journal will record who did what and when. It you have family members who exaggerate their own contributions and minimize yours, you will be in a position to settle some family feuds when you pull out the book.

Take a moment to visualize yourself, journal in hand, saying something like this: “Well, Aunt Irma, according to our journal, Mom last heard from you about six months ago.”

4. I will arrange for occasional respite care

If you and your elder live under the same roof, caregiving is a 24/7 job for you. From time to time you need to get away for more than an hour or two. This is where respite care comes in. If you don’t know where to find respite care, ask your caregiver group or local caregiver support agency. You can also try doing an Internet search on something like “caregiving respite and adult day care.”

It is generally agreed that the most common cause of caregiver burnout is inadequate self-care on the part of the caregiver. Your elder needs you; therefore your elder needs you to take care of yourself. No matter how much you love your work, you need to get away from it sometimes.

3. I will keep a list of tasks for people who ask what they can do help.

What an eclectic list this can be. Here’s a top-of-my-head sampling of the kinds of things it could contain:

  • Play cribbage with Uncle Joe
  • Take Mom’s car to get the tires rotated.
  • Drive Dad to the lab for his blood draw.
  • Pick up these items at the grocery store.
  • Take Aunt Nettie to church
  • Wash and fold this laundry
  • Stay with Grandpa for two hours so I can go out for a while.
  • Help with Nana’s birthday party

Your own situation will suggest dozens of items like this. It pays to have them written down, however, so that you have something to say when someone makes an offer like, “Let me know if there is anything I can do.”

2. I will become (or remain) active in a caregiver support group

Here’s another topic that makes me sound like a broken record. Yet it’s important to keep reminding caregivers of the simple fact that isolation is the caregiver’s enemy. In fact, the more challenging your caregiving situation, the more you need a support group. In a caregiver support group, you can get information, advice, understanding and personal and emotional support of a sort that really isn’t available anywhere else.

Support group members will understand the occasional anger and frustration you feel. They will identify with your uncertainty, self-doubt and conflicting desires.

Once you become comfortable with the members of the group, you can begin to speak in a kind of shorthand. Group members will remember that you are doing what you do out of love. They will not think less of you if you admit to feeling angry or frightened or overwhelmed.

In short, a support group will introduce you to the kindred spirits you might not meet elsewhere.

1. I will never say, “I will never put you in a nursing home.”

This is the big one. A few months ago, I devoted an entire post to this topic. But it’s worth repeating here: the no-nursing-home pledge is the promise a caregiver cannot keep and cannot reasonably be expected to keep.

Period.

If this seems counter-intuitive, even unkind, please read my earlier post.

There. Now, caregivers, please have a great 2008.

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There are 6 Responses to “Top 10 New Year’s Resolutions for Family Caregivers”

#1 Need To Exercise - 14 January, 6:28 PM

[…] Top 10 New Year’s Resolutions for Family Caregivers […]

#2 LaVeda H. Mason - 15 January, 2:15 AM

#5 is the best (and most unusual) piece of advice that I have heard. I’m specifically mentioning this one, because you’re so busy running around, that you can’t rely on your memory to keep track of meds, appts, comings and goings by other family members.

This is fantastic!! (Actually, the whole list is fantastic :-))

#3 samoliver - 04 June, 2:48 PM

This site is filled with insights into the nature of soul, and how, dying people teach us to live. It is a great resource for healing through your grief.

#4 Donna Williams - 17 July, 11:34 AM

I read your blog and am espically interested in the #1 issue - When is it okay to make the decision to place your loved one in a skilled nursing facility? I have been caring for my mother for almost a year now. When she was diagnosed the dr said maybe 2 months (end-stage heart failure) I feel like Mom needs more care and social interaction than I can now provide but guilt keeps slipping in on me. I feel like I’m waving the white flag and surrendering. How will I know if it’s time or not?

#5 Pete - 18 July, 11:48 AM

Donna,

My wife and I have been where you are now. As a result, my gut tells me that your situation may be worse that you have been willing to admit to yourself or anyone else.

The short answer to your question is this: If you are beginning to wonder if it is time to think about finding a place for your Mom, it is probably waaaaaay past time to do it. This is why I say that:

There are three issues at work here. The first is your Mom’s level-of-care need at this point. The second is your own physical and mental state. The third is the power of your caregiver guilt. All of these are equally important in deciding what needs to happen next for both you and your Mom.

A year is a very long time for a sole caregiver. In the typical situation, the care recipient’s needs become greater incrementally, sometimes almost imperceptively. The likelihood is that your Mom needs a LOT more from you than she did a year ago, even if you haven’t consciously realized it.

Caregiving is just about the most demanding work you can do, because the job relentlessly becomes more difficult at the same time you, as the caregiver, become more and more exhausted from it. Every single day, you must do more work than the day before with less energy than you had the day before.

Caring for a parent is an act of compassion and love. These are just about the noblest instincts we human beings have, and they are the best possible reasons for anyone to become a caregiver. But, and this is a HUGE but, compassion and love NEVER EVER tell you when you have done all you can do and it is time to stop.

Caregiver guilt arises as your own resources and abilities become more and more strained. Your compassion and love twist themselves into a dangerous kind of guilt that tells you you must do more and more and more, even when you know for certain that you cannot do more. You can’t win that one alone.

So, if you haven’t already done so, it’s time for you to start talking to people. Talk to your Mom’s doctors. Talk to your own doctor. Talk to other family members, if there are any. Talk to clergy. Contact your local Area Ageny on Aging. Try to locate local sources of respite care so that you can have a few hours to yourself.

And start looking now (as in today!) for the skilled nursing facility that’s best for your Mom. It is the most loving and compassionate thing you can do for her.

My best wishes to you and your Mom,

Pete
CaregivingBlog.com

#6 richh - 17 August, 7:30 PM

You top ten list is very good. Thank you for sharing some very helpful and practical advice!

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